Daily Drip

Disclaimer: I’m not a doctor and the information you read on this page and throughout this website is based on my own research as it may apply to my own unique situation. Before starting or consuming any exercise program, diet or supplements, please check with your doctor. DO NOT follow my advice or examples without first consulting with a healthcare professional that is knowledgeable about your disease, condition and symptoms.

During the past month, since being diagnosed with heart failure and kidney disease, I’ve spent countless hours searching for real life stories.  While medical websites give me the textbook version of living with CHF, I needed a firsthand account of what life is like with heart failure.  To my disbelief there was very little out there that gave me hope, answered my questions, lifted my spirits or made me feel like anyone really cared to write much about this condition that affects 5.1 million people in the US.

For better or worse, I’ve taken it upon myself to share EVERYTHING about my fight to beat a dying heart.  I will share with you information about my medication, my diet, exercise habits, daily routine, ups and downs, medical procedures and victories and defeats. I encourage you to provide feedback and to interact with others.  I hope you will feel comfortable enough to share your personal story with those of us in this fight.

Please visit this site often as its content and subject matter will change frequently.


July 11, 2017

Had a meeting with my nephrologist today. My GFR, in my one remaining kidney, remains at 59 and creatinine averages 1.4 mg/dl, which isn’t too bad for a muscular guy with a solitary kidney.  My kidney health hasn’t changed in the past two years so the doctor doesn’t need to see me again for another year.

For those of you suffering from kidney disease, drink plenty of water, keep protein intake under 100 grams a day and refrain from consuming weight lifting supplements.


July 9, 2017

It’s been quite some time since I’ve updated this page so thought I would add to it today.  I’ve been feeling really run down the past few weeks.  Based on my test results run a few months ago, I shouldn’t be feeling bad.  My GFR is at 59 and all of my other tests came back normal.  I haven’t had my heart checked for about 6 months but it hasn’t given any indication that my heart failure is progressing.  Maybe I’m just overworked and not sleeping well.  I still work out 3 to 4 times a week; however, become pretty exhausted after about 45 minutes lifting.  The average total weight lifted during this time period is about 17,000 lbs.  Prior to my diagnosis, I would typically lift 23,000 to 25,000 lbs in total weight.  I’ll keep you posted.


MARCH 26, 2016

Had a good night’s sleep. Woke up early for work and noticed my hands and fingers aren’t cold. After three days of feeling like my hands were in a freezer this is a nice relief.  Evidently cold hands can be a temporary side effect of heart failure meds.  Blood pressure this morning was 118/74 with a pulse of 75.  Ate a bowl of shredded wheat and a protein bar for breakfast. Feeling really well today.


 

MARCH 25, 2016

My hands have been very cold for the past three days. Even inside with the room temp at 70 degrees, my fingers are ice cold. Also have noticed for about the same time period that my ankles are sore. I don’t have any swelling in my legs or ankles but they ache constantly. Have reported both to the doctor and waiting on information to explain these side effects. My heart should be working better now with the meds and my EF has been upgraded to 40. Not sure why the problems with my hands and ankles.


MARCH 23 – MARCH 24, 2016

Not much to report during these past two days.  Per the doctor’s orders, I’ve been taking it pretty easy following my cardiac catheterization. Haven’t worked out for 3 days and can definitely feel it. Doing a lot of research about heart healthy foods, always keeping in mind that what may be good for my heart may not be good for my kidney.


MARCH 22, 2016

Underwent a cardiac catheterization today.  Doctor found no blockage or heart abnormalities and upgraded my ejection fracation (EF) from 35 to 40. While the EF reading is very subjective, I like to think my diet and meds were contributing factors to the improvement.


MARCH 16, 2016

Doctor increased my Carvedilol (Coreg) to 6.25mg twice daily

 

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